Syd Update

Sorry that this took a few days to get back to many of you, but yes, Sydney did have another seizure (tues the 5th) after a 4 month hiatus. It was the worst one yet since her breathing stopped for a bit, and the whole thing lasted about 3 minutes. Cameron and I were pretty shaken up since we were prepared to inject her emergency medicine (if the seizure lasts up to 5 minutes). We have never had to do this, but this time we were certain we would need to. It was also frightening to see her turn color that I have never seen on a child…deep purple. She took a huge gasp of air this time right as she came out of it, and then fell asleep almost immediately for about 4 hours. It was horrible.

This was especially difficult since Cameron and I had both naively assumed that the “phase” was over and she had already grown out of it. We both know it was silly to believe that, but we were just really hopeful since it had been a while since her last seizure. As it is now, we had to up her medicine again, which should hopefully keep her seizures at bay for a while. I think that as her body grows she will just need higher doses. Her little system is taking a beating with these meds, but hopefully in the long run she will in fact, outgrow this epilepsy. Let’s keep our fingers crossed! Thanks for all of the support!