December 2008

Christmas 2008 - almost 2 and a half years ago.

I look back on these pictures and vividly remember the horror that we went through almost 2 and a half years ago; my baby repeatedly turning blue in my arms, the long ER visit where the seizures wouldn't stop, the ambulance ride, the spinal tap, my drugged up unstable baby, the EEG's, the never ending screaming those first couple nights in the hospital, the metal cage, the diagnosis, the medicine's, the side effects, the long nights at home, the irritability, the inability to express her pain,...it was a mothers nightmare. It has been a roller coaster ride these last two and a half years, one that only seemed to stop for a few weeks at a time, but, (and I use much caution in saying this), I think that this chapter in Sydney's life has finally come to close. The difference is unbelievable! She is sleeping, she is talking, and she is interacting more than ever. I believe that she will remain "epileptic" throughout her life and must use caution around triggers such as bright lights and high fevers. For now though, she is seizure free, medicine free and she is a new kid. A happier kid. She is SYDNEY, (but with a lot more spunk, smiles, and words, and a lot LESS screaming!)

We love you big girl!