Finally, a face to match the name. And what a face it is. :)
Friday, February 27, 2009
Thursday, February 26, 2009
Test Results
Sydney got her EEG test results and they came back normal. WOOHOO! we are super psyched about this as now we know that there are no anatomical brain abnormalities. Both the MRI and EEG were clean and we could not be more grateful. At this point we meet with the Neurologist on Thursday and I am sure he will tell us that its idiopathic epilepsy meaning that the cause is
unidentifiable, and presumably genetic. We are hoping that this is something that she will outgrow as many infants do. Until then, we just have to suffer through these meds. Hopefully she will start getting used to them and sleeping. We shall see.
unidentifiable, and presumably genetic. We are hoping that this is something that she will outgrow as many infants do. Until then, we just have to suffer through these meds. Hopefully she will start getting used to them and sleeping. We shall see.
Wednesday, February 25, 2009
Look Out American Idol
Cameron was so proud this morning as Dylan sang with him on Guitar Hero. What a rock star! He even memorized the chorus. That's my boy!
Tuesday, February 24, 2009
Everyday life...
No one would probably think that taking a shower is frustrating when you have two kids. But, when you have two kids with different nap schedules, and whose naps depend on absolute silence, it gets tricky. I can't take a shower when Syd is asleep because to no avail, she will wake up, and vice versa with Dylan. So, here is my strategy, when I get in the shower Dylan HAS to come is or he will sit screaming bloody murder. The second the water is turned on he is undressed and in the shower in less than 30 sec. To keep Sydney happy and close by, I have Dylan play a game with her, the "touching hands game". Syd stays happy, and Dylan loves moving his hand before she touches it. Oh the things we do for our kids...I could just put them both in thier rooms and let them cry, but I just don't have the heart to do it. Just imagine the excitement I have when I get to shower when dad is home watching the kids...its Christmas all over again!
Oh and by the way, don't bother looking too close, I did do my share of zooming and checking this picture close to make sure I didn't pull an Elaine (Seinfeld) on her Christmas cards. :)
Oh and here is a pic of Sydney face forward since apparently I am not posting enough pics of her. She is still as cute as ever...I can't get enough of those curls.
Oh and here is a pic of Sydney face forward since apparently I am not posting enough pics of her. She is still as cute as ever...I can't get enough of those curls.
Monday, February 23, 2009
Parakeets!
Did I mention that Dylan got two parakeets for his birthday? Grandma Minnie and Grandma Maria sent some money and Dylan wanted a bird, (luckily they were half off so we got two!). Cameron and I picked them out at the store and had them ready in a cage for when Dylan came home from Grandmas. He was so excited. He plays with them for hours everyday, which is nice for me :). Watch the video to see what he named them. He is such a charmer.
Sunday, February 22, 2009
What a man!
Cameron also recieved a huge promotion recently as head lead therapist at his work (after only being there almost two years). He is such a smarty, and its no secret that everybody who meets him loves him (particularly me). I am so proud of him!
Thank you Cameron for all that you do, you are the heart and soul of this family!
Friday, February 20, 2009
Sydney's EEG
Sydney finally went in to get her EEG done yesterday (why they didn't do this while she was in the hospital in January is ridiculous, but at least she is finally getting it done) . We will not know the results until next week, but for now we are hopeful and excited to get some answers. She has not had a seizure in two weeks so we know her new meds are working great, we would just like an official diagnosis so we can know what her future holds.
Here is Syd getting ready for the electrodes to be put on her head. It was amazing, we have NEVER seen her sit still for such a long period of time, (and while she was tired at that). We needed to keep her sleep deprived for the test so she had been up since 5 am and had missed her nap. She usually screams when she is this tired, but she loved, I mean LOVED the woman touching and marking her head, it was as if she was getting a massage. A few times she even smiled as if it was tickling her. It was amazing how good she was. She needs one of those stickers that we used to get at the dentist, "I was good, I held still". Remember those?
As soon as Sydney laid down she cried for maybe two minutes and fell fast asleep. Again, amazing! You should see what we go through every night to get her to sleep, and here she just dozed off on her own (with her froggy of course). It was incredible. What a gift for Cameron and I as we were tired from keeping her up all morning and in the car.
After a while we had to wake Syd up to do the lights test. This is where they put an obnoxious flashing light in front of her to see if it sparks brain activity. Again, you will see how still Sydney was the entire time. Anyone that know her knows this was a miracle. Never in her 10 months has she ever sat this still unless she was nursing (and even then its questionable). She was great, and it couldn't have gone better. I will post again when I get the results. Hope for the best!
Here is Syd getting ready for the electrodes to be put on her head. It was amazing, we have NEVER seen her sit still for such a long period of time, (and while she was tired at that). We needed to keep her sleep deprived for the test so she had been up since 5 am and had missed her nap. She usually screams when she is this tired, but she loved, I mean LOVED the woman touching and marking her head, it was as if she was getting a massage. A few times she even smiled as if it was tickling her. It was amazing how good she was. She needs one of those stickers that we used to get at the dentist, "I was good, I held still". Remember those?
As soon as Sydney laid down she cried for maybe two minutes and fell fast asleep. Again, amazing! You should see what we go through every night to get her to sleep, and here she just dozed off on her own (with her froggy of course). It was incredible. What a gift for Cameron and I as we were tired from keeping her up all morning and in the car.
After a while we had to wake Syd up to do the lights test. This is where they put an obnoxious flashing light in front of her to see if it sparks brain activity. Again, you will see how still Sydney was the entire time. Anyone that know her knows this was a miracle. Never in her 10 months has she ever sat this still unless she was nursing (and even then its questionable). She was great, and it couldn't have gone better. I will post again when I get the results. Hope for the best!
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